The family of an 11-year-old child with a rare brain injury is upset the province won't pay for treatment recommended by specialists in Halifax and Toronto.
Nova Scotia won't pay because the therapy is delivered at a treatment centre, not an accredited hospital.
Faith Swinkels bites and lashes out because a brain injury makes her hyper and aggressive. Her mother Jilian says frequent epileptic seizures also keep her out of school.
"Medications aren't effective because they work in the [part of] the brain she doesn't have," Jilian Swinkels said in their Antigonish home.
"To keep her day full is a big challenge. She's not at school, wakes up at 4:30 in the morning. Every day is different. Medications don't work because she lost all of her frontal lobes."
She's a lively child and her family said she hugs like a Green Bay Packer.
One in two million
Faith was a healthy seven year old when the common herpes virus that usually shows up as a cold sore attacked her brain and she nearly died. Such attacks happen about once in every two million cases.
The province paid for Faith to be assessed at Toronto's Sick Kids hospital. Doctors there echoed what her IWK team recommended: three months of intense behaviour therapy at Ontario's Child and Parent Resource Institute.
It's financed by the Ontario Ministry for Children and Youth Services. The 60-year-old program has 11 child psychiatrists on staff. Children can stay for up to six months while an inter-disciplinary team works on modifying behaviour.
MSI approved the treatment plan, but Nova Scotia's Department of Health overruled it. The province only covers out-of-province treatments at accredited hospitals.
Seek in-hospital care, province says
Peter Vauaghan, Nova Scotia's deputy health minister, said the institute doesn't qualify for government coverage.
"Hospitals that are doing the same kind of work are the first option," he said.
He said the family should get a referral for a facility that is covered.
But Faith's grandmother, Pam MacLean, said they haven't found a comparable therapy inside a Canadian hospital.
"From what I can glean, they would be willing to spend ten times the amount of money send her to a facility in the U.S.. I don't get it," she said.
Unless the government changes its decision, the family will keep trying to find Faith suitable treatment somewhere the government will cover.
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